Inherited Disease Registry
After our successful first CIDG Family information evening last year we are pleased to be able to host another one this year. This year’s theme is based around our motto; “Detect. Protect. Enable.” and will be looking at “The Family Journey” into Cardiac Inherited Disease. When: 16th September. 17.30 – 19.30 Where: Crowne Plaza Hotel, … Continued
Did you watch TV3 last night? The brave Poupouare whanau talk about their heartache of losing their son Elliott, at just 17 years of age. Dr Jon Skinner, our clinical lead, is also talking about sudden cardiac death and our goal to make genetic testing compulsory in young people, when no cause of death is … Continued
Its finally here, the wait is over! Dr Jon Skinner, our clinical lead, talking about CIDG at our public meeting last year in The Langham, Auckland. The purpose of this event was to raise awareness and discuss cardiac inherited disease/sudden death in young people in NZ. This was the first meeting we opened up to the public … Continued
CIDG has had a big presence at two major international meetings in May 2016. At Heart Rhythm in San Fransisco, one of the most significant meetings in the world dealing with heart rhythm disorders, Dr Jon Skinner, our clinical leader (pictured below), gave two presentations related to CIDG business. In particular he presented talks about of … Continued
Tune into One News this Sunday evening at the end of the news to see an interview with this weeks “Good Sort”, Gareth from AED Locations NZ, a friend of CIDG’s and the founder of the AED Locations NZ app and website. AED Locations is a community-orientated volunteer project designed to make people aware of … Continued
CIDG have just realised new research regarding the importance of medical staff obtaining a three generation family tree as part of the patient assessment on admission to hospital. Tom Donoghue and Mandy Graham, both senior experienced cardiology nurses and CIDG Coordinators, looked at the documentation of family histories taken during inpatient cardiology admissions. Over a … Continued
Researchers say they may have pinpointed a treatment that might prevent Hypertrophic Cardiomyopathy (HCM). Using research from 15 years ago that showed the condition can be caused by problems in the myosin protein, the team has been testing a small molecule inhibitor on mice with myosin gene mutations. Myosin is responsible for making the heart … Continued
Everyone at the Cardiac Inherited Disease Group (CIDG) would like to wish you and your family and whanau a very Merry Christmas and a wonderful New Year to come. 2015 had been a wonderful year for CIDG for many reasons. We have published several research articles into international journals. We have our wonderful new … Continued
If you attended our CIDG public event in September you will remember the story of Matt Lang and the memorial beer that was made to commemorate him and raise funds for much needed community AED’s. Matt, who passed away suddenly in December 2013, is fondly remembered by his friends and colleagues at Tuatara Brewing with … Continued
Laurent Vidal passed away in his sleep at home overnight on the 10th November 2015 in Gigean, in the South of France aged 31. Laurent the French (and self proclaimed 49% kiwi) Olympian athlete was the fiancé of Kiwi triathlete Andrea Hewitt. Hewitt was with her partner in the apartment they share together at the time and is now … Continued