Covid-19 and Cardiac Inherited Diseases: Update

Special advice for people with Cardiac Inherited Disease during the COVID-19  pandemic: Long QT Syndrome (LQTS): There is nothing to suggest that those persons with LQTS who develop Covid-19 infection have a different clinical course than those without LQTS. BETA BLOCKERS (SUCH AS NADOLOL, ATENOLOL, BISOPROLOL AND METOPROLOL ARE SAFE AND SHOULD BE CONTINUED. As … Continued

Article: The rhythm of the heart

Did you catch “The rhythm of the heart” article in the Listener? About Dr Annika Winbo’s research into Long QT Syndrome and cell abnormalities. Listener Article Feb 29 2020

New Research Article – ICDs in patients with CPVT

Outcomes from patients in the New Zealand Cardiac Inherited disease registry have contributed to a significant piece of research regarding the use of ICDs (implantable defibrillators) in patients with CPVT (paper linked below). Patients tended to do worse with an ICD. It is important to note that this does not mean that ICDs should never … Continued

2018 CIDG public Event – 30th November 2018

We are delighted to invite you along to CIDG’s public family evening on 30th November 2018. Following the last very successful family information evenings, we are delighted to offer another family session this year and we would love you to attend. The feedback we received from last year’s meeting has enabled us to put together … Continued

Long QT molecular autopsy in sudden unexplained death in the young (1-40 years old): Lessons learnt from an eight year experience in New Zealand

The CIDG team are pleased to announce our latest research publication detailing our experience of long QT genetic testing in victims of sudden death over an eight year period. The lead author was Dr Luciana Marcondes, our new paediatric heart rhythm specialist at the Starship Children’s Hospital. Bottom line- approximately 20% positive finding in these … Continued

Auckland family living with LQTS – News Hub Interview

Another great interview with one of our families who are living with Long QT Syndrome. Thank you to the Teina, Ruby, Georgia and Mandy for sharing your family’s story with us and continuing to help raise awareness of LQTS within the wider community. And Georgia we think your ICD-friendly sports bra design so your sister … Continued