The CIDG team are pleased to highlight this article in the very influential heart journal, the Journal of the American College of Cardiology. We thank all the more than 4000 participants on this registry for allowing this to happen. Doctors around the world are learning from the information you have allowed us to collate. Unique … Continued

Covid-19 and Cardiac Inherited Diseases: Update

Special advice for people with Cardiac Inherited Disease during the COVID-19  pandemic: Long QT Syndrome (LQTS): There is nothing to suggest that those persons with LQTS who develop Covid-19 infection have a different clinical course than those without LQTS. BETA BLOCKERS (SUCH AS NADOLOL, ATENOLOL, BISOPROLOL AND METOPROLOL ARE SAFE AND SHOULD BE CONTINUED. As … Continued

Article: The rhythm of the heart

Did you catch “The rhythm of the heart” article in the Listener? About Dr Annika Winbo’s research into Long QT Syndrome and cell abnormalities. Listener Article Feb 29 2020

New Research Article – ICDs in patients with CPVT

Outcomes from patients in the New Zealand Cardiac Inherited disease registry have contributed to a significant piece of research regarding the use of ICDs (implantable defibrillators) in patients with CPVT (paper linked below). Patients tended to do worse with an ICD. It is important to note that this does not mean that ICDs should never … Continued

2018 CIDG public Event – 30th November 2018

We are delighted to invite you along to CIDG’s public family evening on 30th November 2018. Following the last very successful family information evenings, we are delighted to offer another family session this year and we would love you to attend. The feedback we received from last year’s meeting has enabled us to put together … Continued