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Re: Cardiac Inherited Disease Registry Cyber Security Incident

Information for Individuals and Families

Tēnā koutou katoa

Thank you for checking the site to find out more about the recently publicised cyber security incident that has impacted access to the Cardiac Inherited Disease Registry.

What we know so far

An IT service provider we work with has experienced a cyber security incident which has affected access to some information that we hold. This includes some records related to the Cardiac Inherited Disease Registry, which are currently inaccessible.

There is no evidence at this stage that our information has been subject to unauthorised access or download. Te Whatu Ora – Health New Zealand is working with the IT service provider, Police and cyber security experts to understand the full extent of this incident and to resolve this as soon as possible.

We can assure you that the usual systems of the health service for appointments and all information for your ongoing clinical care have not been affected.

Support is available

We understand this situation may be concerning for you and your whānau, as it is for us.  Below are some of the organisations that are here to support you should you have any questions or concerns:

  1. Te Whatu Ora – Health New Zealand

Please continue to check our website as we will continue to update information on this incident.

If you would like us to contact you back directly. Please fill in the webpage contact form if you have any immediate concerns or to request a call back.

Alternatively, you can contact our dedicated helpline 0800 638 924 from 8.30am-5pm Monday to Friday.

  1. IDCare

If you would like guidance on additional ways to protect yourself, you may wish to contact IDCare, New Zealand’s national identity and cyber support community service that specialises in working with community members to protect and respond to personal information risks. IDCare can be contacted on 0800 121 068 from 8.30am-5pm Monday to Friday or by visiting their website:

  1. Privacy Commissioner

The Privacy Commissioner has been notified about this incident. If you have concerns or need further information on your privacy rights, you may wish to contact the Privacy Commissioner:

We will provide further updates as we know more.

Nāku iti nei, nā
Yours sincerely

Jackie Crawford

National Coordinator

Cardiac Inherited Disease Registries

(on behalf of the CIDG team)