Author: Louise Monson

The CIDG team are pleased to highlight this article in the very influential heart journal, the Journal of the American College of Cardiology. We thank all the more than 4000 participants on this registry for allowing this to happen. Doctors around the world are learning from the information you have allowed us to collate. Unique … Continued

The cardiac society of Australia and New Zealand has released guidelines for the management of patients with cardiac inherited diseases during the COVID -19 pandemic. CSANZ-Consensus-statement-for-patients-with-Genetic-Heart-Disease-and-COVID-19.pdf

Special advice for people with Cardiac Inherited Disease during the COVID-19  pandemic: Long QT Syndrome (LQTS): There is nothing to suggest that those persons with LQTS who develop Covid-19 infection have a different clinical course than those without LQTS. BETA BLOCKERS (SUCH AS NADOLOL, ATENOLOL, BISOPROLOL AND METOPROLOL ARE SAFE AND SHOULD BE CONTINUED. As … Continued

Another great article published recently by Associate Professor Katharine Wallis from the University of Queensland. Bad Gene Hunting – Sudden Unexplained Death and Familial Long QT Syndrome  

Did you catch “The rhythm of the heart” article in the Listener? About Dr Annika Winbo’s research into Long QT Syndrome and cell abnormalities. Listener Article Feb 29 2020

https://i.stuff.co.nz/national/health/115987960/video-games-can-be-as-dangerous-as-playing-sports-new-research-reveals A news item about Dr Skinner’s latest article, Syncope due to Ventricular Arrhythmia Triggered by Electronic Gaming published in the latest edition of the prestigious New England Journal of Medicine.

Its official, grapefruit juice is potentially dangerous for subjects with long QT syndrome! In a study from Israel, subjects were asked to drink 2L of grapefruit juice a day (not everyone can do that!…), and when they did, they put out their QT interval by an average or more than 20ms. If a new medication … Continued

Outcomes from patients in the New Zealand Cardiac Inherited disease registry have contributed to a significant piece of research regarding the use of ICDs (implantable defibrillators) in patients with CPVT (paper linked below). Patients tended to do worse with an ICD. It is important to note that this does not mean that ICDs should never … Continued

We are delighted to invite you along to CIDG’s public family evening on 30th November 2018. Following the last very successful family information evenings, we are delighted to offer another family session this year and we would love you to attend. The feedback we received from last year’s meeting has enabled us to put together … Continued

After the sudden unexpected death of a young person, a high quality autopsy may reveal a cause which may run in a family. If it is found, family can be protected, if missed, they cannot. The national CIDG executive are very concerned about the Ministry of Justice plans for Forensic services.  Iwi in Taranaki are … Continued