Professor Skinner’s Inaugural Lecture
On the 16th August 2017 Dr Jon Skinner, our esteemed clinical lead at CIDG became Professor Jon Skinner and gave his inaugural lecture. Take a look below;
News
How to measure a QT interval – PDF
We are delighted to highlight a new article guiding professionals how best to assess the QT interval. This should help improve communication between professionals and help avoid over and under diagnosis of long QT syndrome. How to measure a QT interval
Live-HCM and Live-LQTS Study invitation
Do you want to be involved in an international study? Are you gene positive or have a clinical diagnosis for HCM or LQTS? Are you registered with CIDG and live in the Auckland/Northland area? Are you aged between 8 and 60 years? This is your opportunity to join an international research collaboration looking at activity … Continued
Living with Long QT Syndrome – short film
https://vimeo.com/221219989
Another article of interest. Written by Jeanne Erdmann and published in 2013, Erdmann looks at the importance of ‘molecular autopsies’ in cases of sudden death in young people. Professor Skinner makes an appearance near the end of the article telling how we are very fortunate in New Zealand to receive funding by the Ministry of … Continued
Radio New Zealand Article
On Radio New Zealand’s Dateline Pacific Ms Matafai shared her story of being diagnosed with Long QT Syndrome and why it is important that we raise awareness of this disease in the wider NZ and Pacific community. Detect. Protect. Enable. http://www.radionz.co.nz/international/programmes/datelinepacific/audio/201843486/samoan-mother-wants-more-awareness-of-long-qt
Dr Annika Winbo and her ground-breaking research
Did you see CIDG on the news last night? Yesterday we were very fortunate to be able to share with the amazing team and donors at Cure Kids Dr Annika Winbo’s cutting-edge research into Cardiac Inherited Diseases, particularly Long QT Syndrome. If you were at last year’s CIDG family event you would have seen Dr Winbo’s talk … Continued
Merry Christmas from CIDG 2016
Detection of sudden death syndrome in New Zealand – It depends where you live.
CIDG have published their data on the national registry of inherited heart conditions. There are huge variations by region. The south island, which still does not have a coordinator, has a registration rate four times lower than the north island. This must mean that many people at risk remain undetected and unprotected. It is time … Continued
Matt Lang Memorial Brew Release 2016
As you may know, Tuatara Brewing have been releasing a special memorial brew the past three years in memory of their much loved mate and colleague Matt Lang who passed away suddenly in December 2013. All proceeds from these brews have gone towards buying AED’s that have been so kindly donated to Auckland Hospital Clinical … Continued