Inherited Disease Registry
On Radio New Zealand’s Dateline Pacific Ms Matafai shared her story of being diagnosed with Long QT Syndrome and why it is important that we raise awareness of this disease in the wider NZ and Pacific community. Detect. Protect. Enable. http://www.radionz.co.nz/international/programmes/datelinepacific/audio/201843486/samoan-mother-wants-more-awareness-of-long-qt
We are pleased to invite you to attend CIDG’s first family Information evening, Cardiac Inherited Disease: Saving Young Lives in New Zealand, for families and individuals affected by Cardiac Inherited Disease. This is to be held in Auckland City at the Langham Hotel on the 18th September 2015. The purpose of this event is to raise … Continued
Welcome to our new cardiac inherited disease group website. We have worked hard to ensure that this website is full of useful information for you and your family to easily access. We welcome your feedback regarding this new and hopefully improved website. Please contact us on the contact us page if you have any feedback. … Continued