Inherited Disease Registry
Did you see CIDG on the news last night? Yesterday we were very fortunate to be able to share with the amazing team and donors at Cure Kids Dr Annika Winbo’s cutting-edge research into Cardiac Inherited Diseases, particularly Long QT Syndrome. If you were at last year’s CIDG family event you would have seen Dr Winbo’s talk … Continued
CIDG have published their data on the national registry of inherited heart conditions. There are huge variations by region. The south island, which still does not have a coordinator, has a registration rate four times lower than the north island. This must mean that many people at risk remain undetected and unprotected. It is time … Continued
As you may know, Tuatara Brewing have been releasing a special memorial brew the past three years in memory of their much loved mate and colleague Matt Lang who passed away suddenly in December 2013. All proceeds from these brews have gone towards buying AED’s that have been so kindly donated to Auckland Hospital Clinical … Continued
We are pleased to invite you to attend CIDG’s first family Information evening, Cardiac Inherited Disease: Saving Young Lives in New Zealand, for families and individuals affected by Cardiac Inherited Disease. This is to be held in Auckland City at the Langham Hotel on the 18th September 2015. The purpose of this event is to raise … Continued