Radio New Zealand Article

On Radio New Zealand’s Dateline Pacific Ms Matafai shared her story of being diagnosed with Long QT Syndrome and why it is important that we raise awareness of this disease in the wider NZ and Pacific community. Detect. Protect. Enable.

Dr Annika Winbo and her ground-breaking research

Did you see CIDG on the news last night? Yesterday we were very fortunate to be able to share with the amazing team and donors at Cure Kids Dr Annika Winbo’s cutting-edge research into Cardiac Inherited Diseases, particularly Long QT Syndrome. If you were at last year’s CIDG family event you would have seen Dr Winbo’s talk … Continued

Matt Lang Memorial Brew Release 2016

As you may know, Tuatara Brewing have been releasing a special memorial brew the past three years in memory of their much loved mate and colleague Matt Lang who passed away suddenly in December 2013. All proceeds from these brews have gone towards buying AED’s that have been so kindly donated to Auckland Hospital Clinical … Continued

CIDG Public Meeting 2017

After our successful first CIDG Family information evening last year we are pleased to be able to host another one this year. This year’s theme is based around our motto; “Detect. Protect. Enable.” and will be looking at “The Family Journey” into Cardiac Inherited Disease. When: 16th September. 17.30 – 19.30 Where: Crowne Plaza Hotel, … Continued

Genetic testing in Sudden Cardiac Death

Did you watch TV3 last night? The brave Poupouare whanau talk about their heartache of losing their son Elliott, at just 17 years of age. Dr Jon Skinner, our clinical lead, is also talking about sudden cardiac death and our goal to make genetic testing compulsory in young people, when no cause of death is … Continued

Dr Jon Skinner, talks about CIDG at our public meeting.

Its finally here, the wait is over! Dr Jon Skinner, our clinical lead, talking about CIDG at our public meeting last year in The Langham, Auckland. The purpose of this event was to raise awareness and discuss cardiac inherited disease/sudden death in young people in NZ.  This was the first meeting we opened up to the public … Continued

May (2016) we all learn and educate

CIDG has had a big presence at two major international meetings in May 2016. At Heart Rhythm in San Fransisco, one of the most significant meetings in the world dealing with heart rhythm disorders, Dr Jon Skinner, our clinical leader (pictured below), gave two presentations related to CIDG business. In particular he presented talks about of … Continued

Gareth from AED Locations NZ is a “Good Sort”

Tune into One News this Sunday evening at the end of the news to see an interview with this weeks “Good Sort”, Gareth from AED Locations NZ, a friend of CIDG’s and the founder of the AED Locations NZ app and website. AED Locations is a community-orientated volunteer project designed to make people aware of … Continued